Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
California Sickle Cell Resources
UCSF Benioff Children's Hospital747 52nd Street
Oakland, California, United States
Email Phone Web
The Northern California Network of Care for Sickle Cell Disease and the California Rare Disease Surveillance Program have recently partnered to further enhance the California Sickle Cell Resources website. Through the collaboration, both programs hope to provide necessary resources regarding Sickle Cell Disease (SCD) for consumers and health care providers in California.
The Northern California Network of Care for Sickle Cell Disease, at UCSF Benioff Children’s Hospital Oakland, launched in 2009 as one of the Health Resources and Services Administration´s (HRSA) programs for sickle cell disease (SCD). HRSA has teamed up with programs around the country to:
-Understand the health care experiences of people with SCD, and
-Test out different ways to improve those experiences.
The Sickle Cell Data Collection program in California collects and analyzes data on the health and health care of Californians living with sickle cell disease (SCD). The data will help improve the health, outcomes and quality of life of these Californians by informing decisions about how best to meet their needs. The project is run by the California Rare Disease Surveillance Program, a part of the California Environmental Health Tracking Program and the Public Health Institute.
+myBinderRelated Content
-
North Star Reach Summer “Camp-At-Home” – Sickle Cell/Hematology/Pain Management CampAlthough we are not gathering at North S...
-
Reduced fitness and abnormal cardiopulmonary responses to maximal exercise testing in children and young adults with...Physiologic contributors to reduced exer...
-
Dental Health in Children with Sickle Cell DiseaseWhat is Sickle Cell Disease? Sickle Cel...
-
Susan Claster, MDDr. Claster graduated from the Universit...
-
PCORI Board Approves $18 Million for Research on Sickle Cell DiseaseThe Patient-Centered Outcomes Research I...
-
SCA Therapy Hydroxyurea Doesn’t Boost Malaria Risk in Sub-Saharan Africa, Study FindsHydroxyurea, a treatment recommended for...
-
University Hospitals Seidman Cancer CenterUniversity Hospitals Seidman Cancer Cent...
