Google
Trusted Resources: News & Events
Latest announcements and gatherings
Sickle cell cure is real, as this Kansas patient proves
Intense pain. Fatigue. Repeated infections, emergency room visits and hospitalizations.
Desiree Ramirez endured them often — until she became the first adult cured at a Kansas hospital of sickle cell disease.
Bone marrow stem cells donated by a stranger rescued Ramirez at age 23. Now, a year past transplant, with follow-up doctor’s office visits slowly receding, she finds herself eagerly anticipating a normal life, one without the inherited blood disorder that affects 70,000 to 100,000 Americans, mostly people of African heritage.
+myBinderRelated Content
-
Pioneering a New Therapy for Sickle Cell DiseaseThe science behind sickle cell disease (...
-
KNOWvember Webinar: A grandparent’s voice – Advocacy and support for chronic pain familiesWhile parents are often the prim...
-
Sickle Cell Disease Coalition (SCDC)https://www.youtube.com/watch?v=oQP-Uq0B...
-
Pediatric to Adult Transition in Sickle Cell Disease: Survey Results From Young Adult PatientsBackground/Aims: We surveyed sickle cel...
-
Public Meeting on Patient-Focused Drug Development for Chronic PainMeeting Information: On July 9, 2018, F...
-
California’s Stem Cell Agency Invests in Stem Cell-Based Therapies Targeting Sickle Cell Disease and CancerThe California Institute for Regenerativ...
-
Increasing Educational Attainment in Adolescents with Sickle Cell DiseaseAdolescents with sickle cell disease (SC...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.