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Sickle Cell Disease Association of America, Inc. Awarded $11.6 Million Continuation Grant from the Health Resources & Services Administration
The Health Resources and Services Administration (HRSA), part of the U.S. Department of Health and Human Services, has awarded the Sickle Cell Disease Association of America (SCDAA) a $2.9 million annual grant for the next four years to establish a national infrastructure to ensure sickle cell disease (SCD) patients receive appropriate follow–up care services including counseling, education, and home care.
The grant was given through the HRSA’s Sickle Cell Disease Newborn Screening Follow-up Program.
As the lead organization behind HRSA’s Sickle Cell Disease Newborn Screening Program, SCDAA in the past two years has provided administrative and infrastructure support to 25 member and non-member CBOs in 19 U.S. states, enhancing their capacity. It launched a National SCD Community Health Workers Training Program and trained more than 85 CHWs. It also developed a shared management system to collect and analyze patient data for HRSA and to report data outcome measures.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.