Google
Trusted Resources: News & Events
Latest announcements and gatherings
Clinical trial offers hope to adults with sickle cell disease
At 33, Alexis Jones-Heggs has known a life filled with “regular crises.”
Times when she was unable to walk or sit up straight or even use her hands to eat. High school graduation, when she’d just gotten out of the hospital and says she “limped all the way across the stage.” Becoming pregnant with her daughter, when some family members feared mightily for her own health.
Yet now, Jones-Heggs hopes, she’s setting a powerful example for people like her with sickle cell disease.
“I feel sort of like a pioneer,” the soft-spoken Jones-Heggs said by phone from Augusta University Health in January, several weeks after undergoing a bone marrow transplant from her sister as a possible cure for the inherited red blood cell disease. “I feel like I’ve opened the door for a lot more people to do this.”
+myBinderRelated Content
-
A multi-center, phase-2 trial of losartan for the nephropathy of sickle cell anemiaBackground: Sickle nephropathy (SN) is ...
-
A Multinational Trial of Prasugrel for Sickle Cell Vaso-Occlusive EventsBACKGROUND: Sickle cell anemia is an inh...
-
bluebird bio Presents New Data from HGB-205 Study of LentiGlobinTM Drug Product in Patients with Transfusion-Depende...First patient with severe sickle cell di...
-
SPCI Launched the SCOT (Sickle Cell Omega-3 Treatment) Trial in the United States with an Investigator Meeting Held ...Sancilio Pharmaceuticals Company, Inc. (...
-
Global Blood Therapeutics Announces Completion of Safety Review by Independent Data and Safety Monitoring Board (DSM...Global Blood Therapeutics, Inc. (GBT) (N...
-
Roald Dahl’s Marvellous Children’s Charity “Everyone’s Business” campaignhttps://www.youtube.com/watch?v=VqdP3Sxa...
-
Sancilio Pharmaceuticals Company, Inc. Announces Completion of Enrollment in the SCOT Trial in Pediatric Patients Wi...Sancilio Pharmaceuticals Company, Inc. (...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.