DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: Community Center
Online groups, photo galleries and blogs
Living With Sickle Cell Disease: One Person’s Story of Pain and Prejudice and Their Hopes for a Stem Cell Therapy
My name is Marissa Cors, I have sickle cell disease. I was diagnosed with sickle cell disease at six months of age. I am now 40. Sickle cell has been a part of my life every day of my life.
The treatments you are supporting and funding here at CIRM are very important. They offer a potential cure to a disease that desperately needs one. I want to tell you just how urgently people with sickle cell need a cure.
I have been hospitalized so many times that my medical record is now more than 8 gigabytes. I have almost 900 pages in my medical record from my personal doctor alone.
I live with pain every day of my life but because you can’t see pain most people have no idea how bad it can be.
Related Content
-
education & researchExecutive functioning mediates the relationship between pain coping and quality of life in youth with sickle cell di...Objective: Sickle cell disease (SCD) is...
-
education & researchI Believe in Therapy ToolkitPrioritizing Mental Health as a Sickle C...
-
Community CenterUnheard Cries of DespairIt would be really unfair for me to comp...
-
videos & visualsHow Sickle Cell Affects the Bodyhttps://www.youtube.com/watch?v=RewyXWKJ...
-
Community CenterWarren rapper draws influence from sickle cell diagnosisSeventeen-year-old Ja’Vionte “Tae Mo...
-
Community CenterMy Story: “Any Day Without Pain Is a Good Day!”At 32 years young, Shakir Cannon is not ...
-
videos & visualsSickle Cell Disease Can’t Stop Alliyahhttps://www.youtube.com/watch?v=pcFdP9cq...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.