DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: Community Center
Online groups, photo galleries and blogs
‘Every Time It’s A Battle’: In Excruciating Pain, Sickle Cell Patients Are Shunted Aside
Amy Mason had toughed it out for hours one day this past July, trying warm soaks and heating pads and deep breathing to soothe pain that felt like her bones were being sawed with a rusty blade.
She knew this was a life-threatening emergency of sickle cell disease, in which her misshapen red blood cells were getting stuck in her blood vessels like tree limbs in a storm sewer. But she delayed going to the emergency room; previous visits hadn’t gone well.
Just before midnight, Mason, 34, finally had her boyfriend drive her to a Mobile, Ala., hospital. She told the triage nurse that she was having one of the worst sickle cell crises of her life and that she was off the far end of the 1-to-10 pain scale. She was told to wait.
Related Content
-
news & eventsThe 2020 ASPHO Conference – CANCELEDMore than 1,200 pediatric hematology/onc...
-
people & placesCarolyn C. Hoppe, MDDr. Hoppe is a senior clinician and scie...
-
education & researchProvider Perspectives of Necessary Factors in Sickle Cell Disease Health Care Transition: Results from an Online Sur...Introduction: Survivorship of children w...
-
education & researchWhen Pain Can Be Eased by Drinking Enough WaterWhen he was only seven, and on holiday a...
-
people & placesWake Forest University Sickle Cell Center of ExcellenceWake Forest School of Medicine has serve...
-
news & events8th Annual Leadership Summit and General Assembly of Patients, Caregivers & CBOsThe Sickle Cell Consortium (SC3) announc...
-
videos & visualsSt Jude Patient Story: Brycehttps://www.youtube.com/watch?v=p6xWFUlQ...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.