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Living With Sickle Cell: ‘I Don’t Know What It Means to Be Without Pain’
Once a month, she undergoes a grueling process called hemapheresis. All of the blood is removed from her body, the platelets and plasma are separated out and returned to her, and…
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Patient Stories · QUALITY OF LIFE · Feelings and Experiences · Living with SCD/Quality of Life · Pain · Psychosocial · Racism
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Once a month, she undergoes a grueling process called hemapheresis. All of the blood is removed from her body, the platelets and plasma are separated out and returned to her, and then Peterson is given eight to 12 units of packed red blood cells. This helps to mitigate the pain she lives with every day.
“I don’t know what it means to be without pain. I have nothing to compare it to,” Peterson tells The Root from her bed at Doctors Community Hospital in Greenbelt, Md. “I have what I call my normal pain, and my pain where I need to be in the hospital. They always ask what your pain scale is from 1 to 10. I function on a normal person’s 7 to 8. It’s like my 2.”
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