Google
Trusted Resources: Community Center
Online groups, photo galleries and blogs
Sickle Cell Survivor’s Twin Mission: Advocacy and Research
Marie was born in Kenya to a single mother, Josephine Ojiambo. She eventually had two younger siblings, but she bonded most closely with her older brother Peter. They were just one year apart. “We sheltered each other… and went through life teaching each other.” Their experiences were very similar. They went to the same schools. They had the same friends. And they both were born with sickle cell anemia, caused by a mutation in a single gene that turns red blood cells into rigid crescent or sickle shapes, instead of soft discs.
Marie’s mother founded the Peter Ojiambo Foundation, of which Marie and her sisters are board members. Marie had done extensive work in the nonprofit space before this, focusing on advocacy and education for sickle cell disease with the Sickle Strong Initiative. Since beginning her advocacy work, the number of treatment options for sickle cell have significantly increased.
+myBinderRelated Content
-
Citizens for Quality Sickle Cell CareThe New England Sickle Cell Institute at...
-
Uriel E. Owens Sickle Cell Disease Association of the MidwestUriel E. Owens Sickle Cell Disease Assoc...
-
Walks, Blood Drives Among Activities Marking Sickle Cell Awareness MonthFrom walks to blood drives, a host of ac...
-
Sickle Cell Disease Association of America, Inc. Names New CEO & PresidentThe Sickle Cell Disease Association of A...
-
Shamonica WigginsShamonica Wiggins is a 30-year-old sickl...
-
Sickle Cell Disease Association of America, Inc. Hires New President & CEOThe Board of Directors for Sickle Cell D...
-
Cynthia Gipson, MACynthia Gipson is a family advocate for ...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
