DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: Community Center
Online groups, photo galleries and blogs
Here to Stay — Living With Sickle Cell Disease
My name is Noah Alexander Williams and I am living with sickle cell anemia disease. Sickle cell isn’t really a widely talked-about disease but it’s so real and epic that it should be.
Sickle cell anemia disease is a grasping chronic sickness that doesn’t let go. Unfortunately I have it and have had it since I was born. I don’t know life without sickle cell disease and therefore I don’t know life without pain — the daily aches, the crucial crises that come out of nowhere. Sickle cell is never predictable. Of course this disease has impacted my life beyond words. I’ve learned to cope with it.
Related Content
-
Community CenterSending a Child With Sickle Cell Disease off to CollegeSickle cell disease afflicts about 100,0...
-
education & researchUnderstanding patterns and correlates of daily pain using the Sickle cell disease Mobile Application to Record Sympt...Patients with sickle cell disease (SCD) ...
-
news & events‘I Have Sickle Cell, but Sickle Cell Doesn’t Have Me’: While Raising Awareness, Chicago Man, 25, Dies From...Elijah Powell was determined to live his...
-
education & researchA Guide to Living With Sickle Cell Disease: Define Yourself, Define Your LifeDefine yourself, define your life. No ma...
-
news & eventsThe Cellie Coping Kit helps sick kids manage the stress of treatmentDesigned by Marsac during her fellowship...
-
videos & visualsHertz Nazaire ( Finding Your Colors ) Adult Coloring Bookhttps://www.youtube.com/watch?v=u5y8BIdE...
-
news & eventsSickle Cell & Me: Survivor Discussion with Clarisse H. (Sickle Cell Survivor)The Lambda Epsilon Sigma Chapter of Sigm...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.