Google
Trusted Resources: Community Center
Online groups, photo galleries and blogs
The challenges of being a caregiver to my cousin with sickle cell
When I embarked on this journey as a caregiver for my cousin Ada, who has sickle cell disease, I soon realized that this path, brimming with love and dedication, also presented an unseen battle: caregiver burnout. Following are some of the frequent challenges I’ve faced — and triumphed over — as a caregiver to my cousin.
Since I started caregiving, sleepless nights have become my constant companion. There are days when all I want to do is sleep without any disturbances, but the unpredictable pain crises that torment my cousin make peaceful sleep a rare luxury. Each creak and whimper transforms into a symphony of worry echoing in my ears.
As time has passed, the lack of sleep has worn down my body and mind. However, I still have to summon the strength to comfort and support Ada, even when my own fatigue threatens to overwhelm me.
+myBinderRelated Content
-
A Sickle Cell Warrior Survival Story— Timi Edwin“When I was 10, I was flogged by a tea...
-
Sickle Cell Disease – The ‘Invisible’ Illnesshttps://www.youtube.com/watch?v=OXFWezTx...
-
Phase 3 Trial of Rivipansel in Treating SCD Pain Crisis Fails to Meet Goals, Pfizer AnnouncesThe Phase 3 RESET trial testing the effe...
-
Racism and Health-Related Quality of Life in Pediatric Sickle Cell Disease: Roles of Depression and SupportIntroductions: Sickle cell disease (SCD...
-
Parents’ StoriesFor couples of African, Caribbean, Middl...
-
World Sickle Cell Day: Sisters Living With Sickle Cell, Hoping for a Curehttps://www.youtube.com/watch?v=y3Bg0RJv...
-
The Rise and Fall of My Mental Health With Sickle CellWe all know that mental health and ment...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
