Trusted Resources: News & Events

Latest announcements and gatherings

51 resources available:

SCDAA Partners With Phi Beta Sigma Fraternity

Source: www.sicklecelldisease.org
Mar 17, 2022

Matthew Porteus awarded grant for sickle cell anemia work

Source: med.stanford.edu
Oct 3, 2017

DDCF Awards $6 Million for Sickle Cell Disease Research

Source: philanthropynewsdigest.org
Sep 23, 2017

PCORI Board Approves $18 Million for Research on Sickle Cell Disease

Source: sicklecellanemianews.com
Sep 21, 2017

GlycoMimetics Announces Pricing of Public Offering of Common Stock

Source: www.businesswire.com
May 24, 2017
183 resources available:

The CRISPR Era Is Here

Source: www.theatlantic.com
Nov 28, 2023

Corinna Schultz, MD: Does Sickle Cell Trait Get Discussed?

Source: www.hcplive.com
Dec 13, 2022

Serious Gum Disease With Sickle Cell May Lead to Repeat Pain Crises

Source: sicklecellanemianews.com
Nov 29, 2022

Lab-Grown Blood: What Is It, and How Could It Be Useful?

Source: www.medicalnewstoday.com
Nov 11, 2022

MARAC Encourages Clinical Research Studies

Source: www.sicklecelldisease.org
Oct 19, 2022

SCDAA News Advisory: Partial Hold on Gene Therapy Trial

Source: www.sicklecelldisease.org
Dec 20, 2021

Experimental Gene Therapy Reverses Sickle Cell Disease for Years

Source: www.cuimc.columbia.edu
Dec 13, 2021

CTX001 Continues to Show Promise in Severe SCD

Source: sicklecellanemianews.com
Jul 8, 2021

MARAC Advisory Statement: Gene Therapy & Bone Marrow Therapies

Source: www.sicklecelldisease.org
May 15, 2021

Gut Microbiome Translates Stress Into Sickle Cell Crises

Source: medicaldialogues.in
Aug 4, 2020

Bluebird Bio Presents Data From LentiGlobin Gene Therapy Trial

Source: sicklecellanemianews.com
Jun 16, 2020

Partnership to Ensure Supply of LentiGlobin, Potential Gene Therapy

Source: sicklecellanemianews.com
May 21, 2020

Sickle cell trait may not increase the risk of death

Source: www.washingtonpost.com
Aug 4, 2019

Sickle Cell Patient Receives CRISPR Gene Therapy

Source: www.labroots.com
Jul 30, 2019

More Online Queries in Winter Suggest Seasonal Variations in SCD Activity

Source: sicklecellanemianews.com
Apr 25, 2019

Big Jump in Success for Sickle Cell Transplants

Source: www.medpagetoday.com
Mar 15, 2019

Could Gene Therapy Cure Sickle Cell Anemia?

Source: www.cbsnews.com
Mar 10, 2019

Vaso-Occlusive Pain Linked to Menstruation in Some Patients, Study Finds

Source: sicklecellanemianews.com
Jan 24, 2019

Safety and early hints of benefit seen in phase 1b trial of PF-04447943

Source: sicklecellanemianews.com
Jan 22, 2019

CTX001 Earns FDA’s Fast Track Status for Treating Sickle Cell Disease

Source: sicklecellanemianews.com
Jan 7, 2019

Gene therapy targets sickle-cell disease

Source: www.nature.com
Dec 12, 2018

Gene therapies could transform the treatment of sickle cell disease

Source: www.washingtonpost.com
Dec 3, 2018

Research Team Recognized for Organ-on-a-Chip Design

Source: engineering.tamu.edu
Nov 8, 2018

How sickled red blood cells stick to blood vessels

Source: news.mit.edu
Sep 3, 2018

Gene-Therapy Company Crispr Drops as FDA Puts Trial on Hold

Source: www.bloomberg.com
May 31, 2018

Stigmatizing language in medical records affects patient care, study shows

Source: sicklecellanemianews.com
May 15, 2018

Sickle cell trait may not contribute to stroke risk

Source: www.genomeweb.com
Apr 23, 2018

Is Caregiver Education About Sickle Cell Trait Effective?

Source: www.newswise.com
Apr 17, 2018

Healthy red blood cells owe their shape to muscle-like structures

Source: www.sciencedaily.com
Apr 4, 2018

The impact of rare disease on family caregivers

Source: www.prweb.com
Feb 28, 2018

Kids Who Need Sickle Cell Meds Don’t Always Get Them

Source: health.usnews.com
Feb 16, 2018

Progress in pursuit of sickle cell cure

Source: www.sciencedaily.com
Feb 16, 2018

First Sickle Cell Patient Dosed in Phase 2a of IMR-687

Source: www.hcplive.com
Feb 14, 2018

University researchers develop more complete model of sickle cell

Source: www.browndailyherald.com
Feb 6, 2018

Fighting sickle cell disease by looking back to babyhood

Source: academicdepartments.musc.edu
Oct 6, 2017

FDA Approves Glutamine Powder for Sickle Cell Disease

Source: www.fda.gov
Jul 7, 2017

Only 21% of Kids with ADHD and SCD Are Treated for Attention Deficit

Source: sicklecellanemianews.com
Jun 8, 2017

Researchers Develop Test for SCA to be Used in Low-Resource Settings

Source: sicklecellanemianews.com
Jun 1, 2017

Imara’s IMR-687 for SCD Receives FDA Rare Pediatric Disease Designation

Source: sicklecellanemianews.com
May 16, 2017

Study Suggests Ways of Improving Newborn Screening for Sickle Cell Disease

Source: sicklecellanemianews.com
Feb 21, 2017

A multiple drug approach to preventing sickle cell crisis

Source: medicalxpress.com
Feb 1, 2017

World’s Largest Sickle Cell Disease Stem Cell Library Underway

Source: sicklecellanemianews.com
Jan 24, 2017

Step toward gene therapy for sickle cell disease

Source: www.sciencedaily.com
Nov 8, 2016

CRISPR deployed to combat sickle-cell anaemia

Source: www.nature.com
Oct 12, 2016

Methadone provides pain relief for kids with sickle cell

Source: medicalxpress.com
Oct 10, 2016

Effort set to help sickle cell patients manage meds

Source: news.vanderbilt.edu
Sep 22, 2016

Discovery could help treatments for sickle cell disease

Source: www.sciencedaily.com
Aug 8, 2016

Genetic Treatments for Sickle Cell

Source: www.scientificamerican.com
May 1, 2016

Sickle cell disease cure in sights of UAB Stem Cell Institute

Source: alabamanewscenter.com
Nov 13, 2015
38 resources available:

SCDAA 2023 National Abstract Competition

Source: www.sicklecelldisease.org
Jul 17, 2023

10th Annual Warriors Convention – Sickle Cell Community Consortium

Source: www.sicklecellconvention.org
Jul 18, 2023

Chief Patient Officer Summit

Source: www.dgevents.com
Jul 18, 2023

Sickle Cell Disease Camp – JWCF at RoundUp River Ranch

Source: roundupriverranch.org
Jul 24, 2023

2023 NHLBI Annual Sickle Cell Disease Research Meeting

Source: www.nhlbi.nih.gov
Aug 14, 2023

NHLBI Annual Sickle Cell Disease Research Meeting

Source: nhlbiworkshopsupport.certain.com
Aug 14, 2023

Class of 2021-2023 Graduation Book

Source: docs.google.com
Aug 25, 2023

Chiltern 50 Challenge

Source: www.ultrachallenge.com
Sep 23, 2023

6th Annual Chicago Sickle Cell Summit

Source: uic.zoom.us
Sep 28, 2023

Society of Pediatric Psychology Fall Virtual Conference

Source: pedpsych.org
Sep 29, 2023

Show Love, Give Blood for National Sickle Cell Awareness Month 2023

Source: sleevesup.redcrossblood.org
Sep 30, 2023

P.O.W.E.R ECHO Project Community Health Worker (CHW) Training

Source: www.sicklecelldisease.org
Oct 12, 2023

SCDF: BabySteps Parent Education Meeting

Source: hipaa.jotform.com
Nov 16, 2023

SCANJ: 11th Annual Statewide Sickle Cell Disease Symposium

Source: www.eventbrite.com
Nov 18, 2023

Sickle Cell Community-Wide Support & Empowerment Group (Nov)

Source: www.eventbrite.com
Nov 30, 2023

SCANJ Holiday Party North with Kenta Klaus

Source: www.eventbrite.com
Dec 14, 2023

SCANJ Holiday Party South with Kenta Klaus

Source: www.eventbrite.com
Dec 22, 2023

Sickle Cell Community-Wide Support & Empowerment Group (Dec)

Source: www.eventbrite.com
Dec 28, 2023

SCDAA Spring Community Health Worker Training

Source: chwtraining.sicklecelldisease.org
Mar 4, 2024

Virtual Sickle Cell Disease Policy Forum

Source: sickcells.org
Mar 19, 2024

5th Annual World Sickle Cell Day 24-Hour Sickle Cell-a-Thon

Source: www.sicklecellevents.org
Jun 19, 2024

SCDAA And MedicAlert Pilot Program Application

Source: www.medicalert.org
Aug 31, 2024
57 resources available:

Sickle Cell Cure Brings Mix of Anxiety and Hope

Source: www.nytimes.com
Jan 17, 2023

Regina Hartfield Is Now the CEO and President of SCDAA

Source: www.hcplive.com
Jan 15, 2022

Q&A With Regina Hartfield, New CEO of the SCDAA

Source: sicklecellanemianews.com
Dec 28, 2021

Sickle Cell Disease Association of America, Inc. Names New CEO & President

Source: www.sicklecelldisease.org
Dec 9, 2021

28-Year-old Sickle Cell Survivor Becomes Medical Doctor

Source: www.legit.ng
Feb 21, 2020

What It’s Like to Live With Sickle-Cell

Source: folks.pillpack.com
Jan 11, 2020

Sickle Cell Treatment ‘Life-Changing’ for Brockton Brothers

Source: www.bostonherald.com
Jan 28, 2019

Devin and Jason McCourty Honored by NFLPA for Community Work

Source: profootballtalk.nbcsports.com
Oct 26, 2018

Sickle cell advocate wins fight for high-dose opioids

Source: richmondfreepress.com
Jul 8, 2018

Chief executive of the Sickle Cell Society is awarded an OBE

Source: www.sicklecellsociety.org
Jun 12, 2018

Sickle Cell Disease Association of America, Inc. Hires New President & CEO

Source: www.sicklecelldisease.org
Feb 20, 2018

Shakir Cannon, advocate for minority health, dies

Source: www.timesunion.com
Dec 8, 2017

Camp Jumoke helping kids cope with sickle cell disease

Source: www.ronfanfair.com
Dec 8, 2017

Sickle Cell Disease Association Announces National Child Ambassador

Source: www.sicklecelldisease.org
Nov 13, 2017

Siri saves sick girl from Harvey floodwaters

Source: www.cnn.com
Sep 5, 2017

Sickle cell cure is real, as this Kansas patient proves

Source: www.stemcelltherapy.me
May 29, 2017
129 resources available:

SCDAA Statement About Gene Therapy Approval

Source: www.sicklecelldisease.org
Dec 8, 2023

SCDAA News Advisory: SCDAA Statement on Exa-cel Gene Therapy

Source: www.sicklecelldisease.org
Oct 26, 2023

MARAC Statement: Update About COVID

Source: www.sicklecelldisease.org
Sep 22, 2023

MARAC Statement: Crizanlizumab (Adakveo)

Source: www.sicklecelldisease.org
Jul 7, 2023

MARAC Advisory Statement: Update on Penicillin Shortages

Source: www.sicklecelldisease.org
Apr 13, 2023

SCD C.A.R.E.S. Consortium

Source: www.sicklecelldisease.org
Mar 21, 2023

MARAC Statement: Penicillin Shortage

Source: www.sicklecelldisease.org
Feb 7, 2023

Standing Up for Sickle Cell

Source: www.facebook.com
Jan 31, 2023

CMO Speaks: Fertility Care and SCD

Source: www.sicklecelldisease.org
Jan 27, 2023

California Campaign Hopes to Raise Awareness About Sickle Cell Trait

Source: sicklecellanemianews.com
Jan 17, 2023

The Warrior Network – Sickle Cell Community Consortium

Source: scwarriornetwork.org
Dec 12, 2022

Sickle Cell Disease and Sickle Cell Trait – SCDAA Brochure

Source: www.onescdvoice.com
Sep 5, 2022

MARAC Advisory Statement: Immunizations

Source: www.sicklecelldisease.org
Aug 31, 2022

MARAC Advisory Statement: Monkeypox

Source: www.sicklecelldisease.org
Jul 20, 2022

SCDAA Releases Comments on the CDC’s Opioid Guidelines

Source: www.sicklecelldisease.org
May 16, 2022

MARAC Advisory: COVID-19 and Sickle Cell Disease

Source: www.sicklecelldisease.org
Mar 17, 2022

Support the CDC’s World Sickle Cell Day Social Media Campaign!

Source: www.sicklecelldisease.org
Mar 15, 2022

SCDAA Celebrates Black History Month: Miles Davis

Source: www.sicklecelldisease.org
Feb 4, 2022

Red Cross Declares First-Ever Blood Crisis Amid Omicron Surge

Source: www.redcross.org
Jan 11, 2022

MARAC Advisory Statement: Update About COVID-19

Source: www.sicklecelldisease.org
Dec 23, 2021

COVID-19 Vaccines for Children and Teens

Source: www.cdc.gov
Nov 23, 2021

SCDAA News Advisory: Salmonella and Sickle Cell Disease

Source: www.sicklecelldisease.org
Oct 22, 2021

MARAC Advisory Statement: Update About COVID-19 Vaccines

Source: www.sicklecelldisease.org
Sep 24, 2021

A Proclamation on National Sickle Cell Awareness Month, 2021

Source: www.whitehouse.gov
Aug 31, 2021

MARAC Advisory Statement: COVID-19 Update

Source: www.sicklecelldisease.org
Aug 26, 2021

MARAC Advisory Statement: Monoclonal Antibodies Against SARS-CoV-2

Source: www.sicklecelldisease.org
Aug 26, 2021

ASH Position on Sickle Cell Trait

Source: www.hematology.org
May 25, 2021

Angels in Heaven Memorial Booklet

Source: www.facebook.com
May 12, 2021

Public Review of CureSCi Common Data Elements

Source: curesickle.org
Dec 31, 2020

MARAC Advisory Statement: COVID-19 Vaccines

Source: www.sicklecelldisease.org
Dec 15, 2020

Why I Will Be Getting the COVID-19 Vaccine

Source: sicklecellanemianews.com
Nov 18, 2020

SCDAA MARAC Position on 2020 School Reopening

Source: www.sicklecelldisease.org
Jul 27, 2020

Coronavirus, Racial Disparity in Sickle Cell Disease

Source: www.hcplive.com
Jul 4, 2020

Sickle Cell Disease: All you Need to Know

Source: indianexpress.com
Jun 27, 2020

Peer-to-Peer Mentoring Program – SCDAA

Source: sicklecelldisease.net
Jun 25, 2020

Smartphone App May Help Assess Anemia Using Eyelid Pictures

Source: sicklecellanemianews.com
May 28, 2020

COVID-19 Health Alert for Patients and Caregivers – SCDAA

Source: www.sicklecelldisease.org
May 27, 2020

What’s Inside My Medicine Cabinet?

Source: sicklecellanemianews.com
May 22, 2020

How My Parents Set Me Up for Success in Sickle Cell Management

Source: sicklecellanemianews.com
May 20, 2020

Information About COVID-19 for Sickle Cell Disease Patients

Source: sicklecellanemianews.com
May 6, 2020

Supermarkets Offer Special Hours for Older Shoppers

Source: www.aarp.org
Apr 22, 2020

Healthwell Foundation Sickle Cell Disease Fund

Source: www.healthwellfoundation.org
Apr 13, 2020

Coronavirus/COVID-19 & Sickle Cell Disorder (Sickle Cell Foundation Nigeria)

Source: www.sicklecellfoundation.com
Mar 26, 2020

GBT Supports Sickle Cell Patients During COVID-19 Pandemic

Source: sicklecellanemianews.com
Mar 24, 2020

Severe Blood Shortage Due To Coronavirus Outbreak

Source: www.redcrossblood.org
Mar 17, 2020

A Health Note From Dr. Biree Andemariam, SCDAA Chief Medical Officer

Source: www.sicklecelldisease.org
Mar 13, 2020

5 Myths and Facts About Sickle Cell Disease (SCD)

Source: www.giveapint.org
Sep 1, 2019

The Sickle Cell Treatment Act (Bill S. 2465) Passed the Senate!

Source: us12.campaign-archive.com
Oct 11, 2018

Initiative helping sickle cell patients

Source: www.journalgazette.net
Aug 30, 2018

Spearheading change on World Sickle Cell Day

Source: mybestmedicine.com
Jun 19, 2018

New drugs promise hope this World Sickle Cell Day

Source: www.forbes.com
Jun 19, 2018

Everyday Heroes: A view beyond the blood

Source: redcrossnevada.wordpress.com
Jun 12, 2018

Red Cross seeks more blood with #MissingType campaign

Source: www.nbcnews.com
Jun 11, 2018

Why the NHS needs more black people to give blood

Source: www.refinery29.uk
Nov 8, 2017

Sickle-Cell Patients See Hope in CRISPR

Source: www.technologyreview.com
Aug 23, 2017

The Upside of Bad Genes

Source: www.nytimes.com
Jun 17, 2017

The National Sickle Cell Advocate Network (NSCAN)

Source: www.pcori.org
Nov 7, 2016

Our healthcare system abandons adult sickle cell patients

Source: www.washingtonpost.com
Mar 21, 2016

Sickle Cell Disease and Cold Weather: Dos and Don’ts

Source: health.usnews.com
Jan 5, 2016

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To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information

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