Google
Trusted Resources: News & Events
Latest announcements and gatherings
5 Myths and Facts About Sickle Cell Disease (SCD)
1. PAIN
MYTH: All individuals with SCD are drug addicts.
FACT: The hallmark of SCD is severe unpredictable pain sometimes requiring high doses of narcotics.
2. LIFESPAN
MYTH: Individuals with SCD don’t live past the age of 21.
FACT: The vast majority of individuals live well into adulthood.
3. TRAIT
MYTH: Sickle cell trait is a mild form of sickle cell disease.
FACT: Sickle cell trait is not a disease; it is generally an asymptomatic carrier state.
– If both parents have sickle cell trait, there is a 1 in 4 chance of having a baby with SCD.
– 1 out of 13 African Americans has sickle cell trait and many don’t know that they have it.
4. RACE
MYTH: SCD only affects black people.
FACT: SCD is seen in people of many races.
5. CURE
MYTH: Bone marrow (stem cell) transplant is a universal cure.
FACT: Not all individuals with SCD are eligible for stem cell transplant. There are associated risks. To learn more about the NIH Cure Sickle Cell Initiative, visit www.curesickle.org.
+myBinderRelated Content
-
Patient-reported experience measure in sickle cell diseaseObjectives: To develop patient-reported...
-
Pfizer and the national newspaper publishers association collaborate to raise awareness of sickle cell disease and n...Pfizer Inc. and the National Newspaper P...
-
Sickle Cell Foundation Nigeria, Rhieos Develop 1st Multi-SCD Registry in NigeriaIn a bid to improve quality of care for ...
-
Let Your Light Shine: Sickle SocialPiedmont Health Services and Sickle Cell...
-
Sickle Cell Disease: a battle for equality, justice and respect | Ahmar Zaidi | TEDxDetroithttps://www.youtube.com/watch?v=RAvi5y95...
-
Tri-County Sickle Cell Disease Association – OrlandoThe Sickle Cell Disease Association of T...
-
Improving Vaso-Occlusive Crisis ManagementMany have spoken out about the need for ...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.