Google
Trusted Resources: News & Events
Latest announcements and gatherings
‘Every time it’s a battle’: In excruciating pain, sickle cell patients are shunted aside
Amy Mason had toughed it out for hours one day this past July, trying warm soaks and heating pads and deep breathing to soothe pain that felt like her bones were being sawed with a rusty blade.
She knew this was a life-threatening emergency of sickle cell disease, in which her misshapen red blood cells were getting stuck in her blood vessels like tree limbs in a storm sewer. But she delayed going to the emergency room; previous visits hadn’t gone well. Just before midnight, Mason, 34, finally had her boyfriend drive her to a Mobile, Ala., hospital. She told the triage nurse that she was having one of the worst sickle cell crises of her life and that she was off the far end of the 1-to-10 pain scale. She was told to wait.
+myBinderRelated Content
-
Me Myself and Sickle CellLiving her life with sickle cell anaemia...
-
Hydroxyurea Use and Outcomes of Pregnancy in Sickle Cell DiseaseBackground: Hydroxyurea reduces pain cr...
-
Here to Stay — Living With Sickle Cell DiseaseMy name is Noah Alexander Williams and I...
-
Prognostic factors of disease severity in infants with sickle cell anemia: A comprehensive longitudinal cohort studyIn order to identify very early prognost...
-
World Sickle Cell Day: Sisters Living With Sickle Cell, Hoping for a Curehttps://www.youtube.com/watch?v=y3Bg0RJv...
-
Today’s Faces of Sickle Cell Disease: Marjorie DeJoie-Brewer, MDIt wasn’t until her second year in med...
-
5 tips on how I manage sickle cell diseasehttps://www.youtube.com/watch?v=4lNPRp2M...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.