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Joining hands: SCDAA and Emmaus medical partner to fight sickle cell disease
In observance of World Sickle Cell Day, Rare Disease Report® spoke with Beverly Francis-Gibson, president and CEO of Sickle Cell Disease Association of America (SCDAA), and Mark Diamond, vice president of commercialization of Emmaus Life Sciences, on their newly announced partnership in an effort to combat sickle cell disease.
The partnership between the nonprofit and the pharmaceutical company will aim to help create and facilitate a symbiotic relationship between patient advocacies, patients, and physicians.
Sickle cell disease is characterized by red blood cells that are hard, sticky and C-shaped (like the farm tool, a “sickle). The potentially fatal rare genetic condition affects an estimated 95,000 Americans – both adults and children. The misshapen sickle cells clog smaller blood vessels; result in excruciating pain, and put patients at an increased risk for infection, acute chest syndrome and stroke.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.