Google
Trusted Resources: News & Events
Latest announcements and gatherings
KNOWvember Webinar: A grandparent’s voice – Advocacy and support for chronic pain families
While parents are often the primary caregivers for their children, especially when he or she lives with a chronic condition, grandparents can also provide a leading role to help the grandchild once he or she has been diagnosed with an incurable disease. For Nancy Rene, whose grandson has sickle cell disease, she quickly learned the benefits her family could experience through her advocacy and encouragement. Join us for this empowering webinar for grandparents to discover how they can engage in their grandchild’s pain journey.
About the Presenter: Nancy Rene spent her career in education. She has served as a teacher of mathematics, school administrator, and math consultant for 36 years. In retirement, she works with various advocacy organizations, including Family Voices of California and Chronic Care Coalition of California. Nancy has served as a member of the Board of the Sickle Cell Disease Association of America. She regularly attends conferences on Sickle Cell Disease and is a Patient Advocate for the California Institute for Regenerative Medicine.
When:
Monday, November 19, 2018
This event has ended.
+myBinderRelated Content
-
Beverly Ndukwu: A Patient Fighting Back With SCDBeverly Ndukwu was diagnosed with sickle...
-
Maryland Sickle Cell Disease AssociationThe Maryland Sickle Cell Disease Associa...
-
Dominique FriendDominique Friend is a 43 year old living...
-
Lorri BurgessLorri Burgess was the Chief Operating Of...
-
Sickle Cell: Whitley Quanhttps://www.youtube.com/watch?v=kOlkfmDG...
-
American Sickle Cell Anemia AssociationThe American Sickle Cell Anemia Associat...
-
Global Alliance of Sickle Cell Disease OrganizationsGlobal Alliance of Sickle Cell Disease O...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.