Google
Trusted Resources: News & Events
Latest announcements and gatherings
Living Rare, Living Stronger – NORD Patient and Family Forum
Rare family, we are back in person! The 2022 Living Rare, Living Stronger Patient and Family Forum will bring the rare disease community together in Cleveland, Ohio for a day of learning, networking, discussion, and the Rare Impact Awards, presented live at the incredible Rock and Roll Hall of Fame in downtown Cleveland!
The health, safety and comfort of attendees and the rare community are NORD’s number one priority, so please review our event guidelines and check back often for more information and updates from the NORD team.
Date:
June 26, 2022
Location:
InterContinental Cleveland Conference Center
9801 Carnegie Avenue
Cleveland, Ohio, United States
This event has ended.
+myBinderRelated Content
-
SCDAA Partners With Phi Beta Sigma FraternityThe Sickle Cell Disease Association of A...
-
Pierrette (P) Mimi Poinsett, MDDr. Pierrette Mimi Poinsett is a physici...
-
Spark Good Care GuideAs a person living with or caring for so...
-
Ep. 30 Jordin Jackson ConversationMiracle kid Jordin Jackson speaks to liv...
-
Assessing Disease Knowledge and Self-Management in Youth With Sickle Cell Disease Prior to TransitionIntroduction: Transition of medical car...
-
Sickle Cell Disease Treatment Centers MapGSCDN organization brings together the l...
-
CSC Support Group for KidsThe Cedric Sickle Cell (CSC) Support Gro...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.