Google
Trusted Resources: News & Events
Latest announcements and gatherings
Queens’s boy, 13, among advocates, doctors in Albany to champion new sickle cell bill
Parker Todd, 13, of Queens, was joined by 45 other sickle cell advocates, doctors, nurses and pharmaceutical representatives in Albany to champion a new sickle cell bill.
Many patients on a panel were able to share their stories with lawmakers educating them on the impact the disease has on hundreds of thousands of people who suffer from the illness.
The group took a tour of the state capital and was introduced on the Assembly Floor. The sickle cell treatment bill is currently pending in the NYS Assembly and Senate. Parker and the other advocates hope the advocacy day has made progress so the bill will be fully funded and approved.
+myBinderRelated Content
-
Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017 (HR 2410, 115th Congress)The Sickle Cell Disease Research, Survei...
-
Rare Disease Week on Capitol HillNow in its 12th year, Rare Disease Week ...
-
Advocacy Day – Sickle Cell Disease Association of America, Inc.Sickle Cell Disease Association of Ameri...
-
The Sickle Cell Treatment Act (Bill S. 2465) Passed the Senate!Senate bill S.2465 (the Sickle...
-
Henrico twins with sickle cell disease take on WashingtonTwin boys from the Richmond area are t...
-
Legislation & Advocacy Efforts Needed in the Fight Against Sickle Cell DiseaseThe American Society of Hematology (ASH)...
-
2022 Annual Advocacy Day Event – SCDAASickle Cell Disease Association of Ameri...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.