Google
Trusted Resources: News & Events
Latest announcements and gatherings
Rare Disease Day at NIH 2023
Rare Disease Day® takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. Each year, NCATS and the NIH Clinical Center sponsor Rare Disease Day at NIH as part of this global observance. Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that address scientific challenges and advance research for new treatments.
The Goals of Rare Disease Day at NIH Are to:
• Demonstrate the NIH commitment to helping people with rare diseases through research.
• Highlight NIH-supported rare diseases research and the development of diagnostics and treatments.
• Initiate a mutually beneficial dialogue among the rare diseases community.
• Exchange the latest rare diseases information with stakeholders to advance research and therapeutic efforts.
Date & Time:
Tuesday, February 28, 2023
9:00 AM to 5:00 PM EST
This event has ended.
+myBinderRelated Content
-
Shakir CannonShakir Cannon was a Health Information A...
-
Individuals with Disabilities Education Act (IDEA)The U.S. Department of Education’s Ind...
-
2019 Chicago Sickle Cell SummitThe Chicago Sickle Cell Summit convenes ...
-
The Empowered Caregivers Forum: A Support Resource for Parents / Caregivers of Warriors With Sickle Cell / Thalassem...Join Carla Lewis, CEO of Kids Conquering...
-
Sickle Cell Society UKThe Society’s mission is to enable and...
-
Karen Proudford, PhDDr. Karen Proudford is President of the ...
-
Today’s Faces of Sickle Cell Disease: Tosin OlaDuring a long hospitalization in 2005, T...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.