DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: News & Events
Latest announcements and gatherings
Rare Diseases and Orphan Products Breakthrough Summit
Each year, the NORD Summit, one of the largest multi-stakeholder events in rare disease, brings together participants spanning the rare community, including rare disease experts and leaders from patient advocacy groups, government, industry, and academia to discuss the most current and critical topics related to rare diseases and orphan products.
Date:
October 17-18, 2022
Location:
Washington, DC
This event has ended.
Related Content
-
news & events2020 RARE on the Road – RaleighThe EveryLife Foundation for Rare Diseas...
-
videos & visualsConnect with the sickle cell community on the SMART social wallhttps://www.youtube.com/watch?v=JObAMmnn...
-
education & researchMedicaid and CHIP Sickle Cell Disease Report, T-MSIS Analytic Files (TAF) 2017Sickle cell disease (SCD), the most prev...
-
people & placesNevada Childhood Cancer FoundationEstablished in 1993, Nevada Childhood Ca...
-
education & researchManaging Pain From Sickle Cell DiseaseWhen you have sickle cell disease (SCD),...
-
news & eventsAn Introduction to the Institute for Clinical Economic Review (ICER) and Their Implications for New Sickle Cell Dise...January 16, 2020 2:00 – 3:00 PM ET W...
-
videos & visualsNew Book Tackles Being a Kid With Sickle Cell Diseasehttps://www.youtube.com/watch?v=sY1iDlKR...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.