DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: News & Events
Latest announcements and gatherings
2020 RARE on the Road – Raleigh
The EveryLife Foundation for Rare Diseases and Global Genes have made the decision to postpone our RARE on the Road events in Raleigh, NC (originally planned for March 28th). We have made this decision out of an abundance of caution regarding COVID-19, and to prioritize the health and safety of our event attendees.
It is our hope to reschedule the event for the summer of 2020.
Please stay tuned for further updates.


Related Content
-
people & placesMary BrownIn dedicating her career to education an...
-
people & placesMarie Ojiambo, PharmDTrained at St John’s University, Colle...
-
Community CenterSickle Cell & Young Stroke Survivors (SCYSS)Sickle Cell & Young Stroke Survivors...
-
education & researchGene Therapy: What You Need to Know (Warrior FAQs)Two gene therapies were recently approve...
-
people & placesSickle Cell Foundation of Palm Beach CountySickle Cell Foundation of Palm Beach Cou...
-
news & eventsPeer-to-Peer Mentoring Program – SCDAAThe goal of the program is to support th...
-
people & placesSickle LifeSickle Life is a sickle cell disease adv...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by

This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.