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Latest announcements and gatherings
2020 RARE on the Road – Raleigh
The EveryLife Foundation for Rare Diseases and Global Genes have made the decision to postpone our RARE on the Road events in Raleigh, NC (originally planned for March 28th). We have made this decision out of an abundance of caution regarding COVID-19, and to prioritize the health and safety of our event attendees.
It is our hope to reschedule the event for the summer of 2020.
Please stay tuned for further updates.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.