Google
Trusted Resources: News & Events
Latest announcements and gatherings
2020 RARE on the Road – Raleigh
The EveryLife Foundation for Rare Diseases and Global Genes have made the decision to postpone our RARE on the Road events in Raleigh, NC (originally planned for March 28th). We have made this decision out of an abundance of caution regarding COVID-19, and to prioritize the health and safety of our event attendees.
It is our hope to reschedule the event for the summer of 2020.
Please stay tuned for further updates.
+myBinderRelated Content
-
Attorney Terri Booker talks about life with Sickle Cell on World Sickle Cell Awareness Dayhttps://www.fox29.com/video/576000...
-
Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of CareImportance: Sickle cell disease (SCD) i...
-
Antigua and Barbuda Sickle Cell AssociationThe Antigua and Barbuda Sickle Cell Asso...
-
Association Between Hospital Admissions and Healthcare Provider Communication for Individuals With Sickle Cell Disea...Objective: To test the hypothesis that ...
-
‘I Have Sickle Cell, but Sickle Cell Doesn’t Have Me’: While Raising Awareness, Chicago Man, 25, Dies From...Elijah Powell was determined to live his...
-
Improving the Lives of Americans With Sickle Cell Disease Roundtablehttps://www.youtube.com/watch?v=qhSPkDA1...
-
A Patient’s Journey With Sickle Cell Diseasehttps://www.youtube.com/watch?v=h8ZetdyY...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.