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Sickle Cell Disease Association of America, Inc. Awards Community Based Organizations With $2,033,080 for Newborn Screening Follow-Up Program
The Sickle Cell Disease Association of America, Inc. (SCDAA) was awarded $2.9 million annually for the next four years from the Health Resources & Services Administration (HRSA) for the Sickle Cell Disease Newborn Screening Follow-up Program in June 2017. With these funds, SCDAA is continuing its efforts to establish the national infrastructure to ensure that individuals diagnosed with sickle cell disease (SCD) receive appropriate care coordination and follow-up services including counselling, education materials and access to a medical home.
SCDAA has identified 16 community based organizations (CBOs) in fifteen states, to receive $2,033,080, 70% of its 2017 HRSA grant award, to support them with the capacity to identify, educate and link patients to care in 15 states across America.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.