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Sickle Cell Treatment ‘Life-Changing’ for Brockton Brothers
Emmanuel “Manny” Johnson, 21, of Brockton was the first patient to participate in a novel sickle cell clinical trial at the Dana-Farber/Boston Children’s Cancer and Blood Disorders Center — taking the risk for the sake of his little brother, who has the same disease.
Staying at the hospital for five or six hours every month for a blood transfusion was something that Johnson described as “a regular thing.” He had been receiving transfusions since he was 4-years-old after sickle cell caused him to have two mild strokes.
Now, Johnson hasn’t had a transfusion in nine months, thanks to the clinical trial. The trial wasn’t easy, but one thing motivated Johnson to stay strong — his 7-year-old brother, Aiden, who also has sickle cell disease.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.