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Virtual Sickle Cell Disease Policy Forum
The SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event. This event is hosted by Sick Cells and the Sickle Cell Community Consortium.
Day One features educational sessions on federal advocacy and provides an opportunity to discuss sickle cell disease (SCD) policy. The day will include:
- Workshops to practice your elevator pitch
- Breakout sessions to meet and practice mock meetings
Day Two features the Virtual Hill Day. Advocates will have the opportunity to meet with legislators and educate them about sickle cell disease issues and policy recommendations.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.