Google
Trusted Resources: News & Events
Latest announcements and gatherings
‘I Have Sickle Cell, but Sickle Cell Doesn’t Have Me’: While Raising Awareness, Chicago Man, 25, Dies From Illness
Elijah Powell was determined to live his life fully, to achieve his goals in spite of his sickle cell diagnosis. He was known for declaring: “I have sickle cell, but sickle cell doesn’t have me.”
On Jan. 14, early in the morning, Powell died due to complications from his sickle cell disease. He turned 25 two days before his death.
He described the pain crisis as “beating you with a bat, or setting you on fire, and you can’t do anything,” and said it was hard having sickle cell because of how the condition depleted his body.
+myBinderRelated Content
-
Devin and Jason McCourty Honored by NFLPA for Community WorkThe NFLPA names a Community MVP each wee...
-
Organisation for Sickle Cell Anaemia Relief and Thalassaemia SupportOrganisation for Sickle Cell Anaemia Rel...
-
2020 RARE on the Road – RaleighThe EveryLife Foundation for Rare Diseas...
-
New England Pediatric Sickle Cell ConsortiumThe New England Pediatric Sickle Cell Co...
-
Zulikhat Segunmaru, BSZulikhat Segunmaru was a patient navigat...
-
Jordin Sparks Wants You to Know Your Sickle Cell StatusThe phrase “know your status” is syn...
-
Welcome to oneSCDvoicehttps://www.youtube.com/watch?v=B-hcFDRb...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.