Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Carla Jones
Patient Support Professional Nurse navigator
Levine Children’s Hospital
1000 Blythe Blvd.
Charlotte, North Carolina, United States
Anyone affected by sickle cell disease knows it is not just patients who need care, families need it too. At Levine Children’s Hospital, families find powerful advocates like nurse navigator Carla Jones.
Carla Jones helps ensure pediatric sickle cell patients stay on track with appointments, lab tests, medications, follow-ups and everything necessary to best manage their care. But Jones is also there to support parents who just learned that their newborn has been diagnosed with a serious, lifelong disease. She is the referral go-between who can relay clinical details from one specialist to another.
She is also a gentle teacher to pediatric patients, explaining medical realities in terms they can understand. For example, she tells preschoolers how normal blood cells are squishy like water balloons, but that some of their cells are hard and shaped like bananas, which causes problems that need special care.
Carla Jones describes her job as “amazing.” She says, “It’s especially gratifying to see parents realize that their children can lead normal lives and to see teens become empowered to take care of themselves.
Related Content
-
III & Long FoundationThe III & Long Foundation was founde...
-
Machnik Sickle Cell Foundation UgandaMachnik Sickle Cell Foundation Uganda (M...
-
Finding the Right Doctorhttps://www.youtube.com/watch?v=9WdVEAU5...
-
Greensboro 7-Year-old With Sickle Cell Disease Raises Money for Kids Like himTJ Wilson has sickle cell disease. His t...
-
A Patient Advocate’s Take on Sickle Cell Disease: The Pain and the PromiseSeptember is National Sickle Cell Awaren...
-
Isaac Odame, MB ChB, MRCP, FRCPath, FRCPCH, FRCPCDr. Isaac Odame is a staff physician and...
-
APHON/ASPHO Policy Statement for the Transition of Patients With Sickle Cell Disease From Pediatric to Adult Health ...With advances in medical care, the major...