Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Network of Rare Blood Disorder Organizations
36 Toronto Street, Suite 1Barrie, Ontario, Canada
Email Web
The Network of Rare Blood Disorder Organizations (NRBDO) is a coalition of national patient groups, formed to share the best practices in health care delivery for people with rare blood disorders such as hereditary angioedema; aplastic anemia, Fanconi anemia, paroxysmal nocturnal hemoglobinuria (PNH), and myelodysplasia; primary immune deficiency; porphyria, sickle cell disease, thalassemia, thrombotic thrombocytopenic purpura (TTP), hemophilia, and von Willebrand disease.
They work and advocate together in a coordinated fashion, toward high quality, effective, accessible, interdisciplinary care for all Canadians affected by rare blood disorders. Their mandate is to improve the healthcare delivery for people affected by rare blood disorders by:
-working together to ensure the best comprehensive care
-ensuring a safe and secure blood system
-supporting the members by sharing best practices in governance
-developing skills in health care advocacy
-avoiding overlap and inefficiencies
Related Content
-
The Sickle Cell Trait Awareness CampaignThe Sickle Cell Trait Awareness Campaign...
-
Shakir CannonShakir Cannon was a Health Information A...
-
Emerging opportunities in sickle cell disease cure, treatment and pain managementIn support of City of Hope’s recent CI...
-
Today’s Faces of Sickle Cell Disease: Marjorie DeJoie-Brewer, MDIt wasn’t until her second year in med...
-
Pacific Sickle Cell Regional CollaborativeThe Pacific Sickle Cell Regional Collabo...
-
How Sickle Cell Anaemia Impacts Families and How We Can Helphttps://www.youtube.com/watch?v=5GUiuXQ9...
-
Ohio Sickle Cell & Health AssociationIncorporated in 1979, the Ohio Sickle Ce...