Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Association of Uganda is now the only grass roots organisation representing the interests of patients in Uganda. They strive to change the perception that the majority of the population has in Uganda about the disease – that those who have this disease are worthless people in society, worth stigmatising and discriminating against. Through counselling and education they strive to improve the lives of these families.
Mission Statement:
Empower the masses (general public) about sickle cell disease so that the occurrence of the disease, and its complications, can be reduced. This will enable individuals to have a purposeful and meaningful life through understanding the principles of healthy living.
Related Content
-
2023 NHLBI Annual Sickle Cell Disease Research MeetingSave the Date for the NHLBI Annual Sickl...
-
Hydroxyurea for Children – A HRSA EMBRACE Projecthttps://www.youtube.com/watch?v=LprBMpPb...
-
Carlton Haywood, Jr., PhD, MABorn January 26, 1976, in Atlanta, Georg...
-
Quality of care in sickle cell disease: Cross-sectional study and development of a measure for adults reporting on a...Documented deficiencies in adult sickle ...
-
The Experience and Health-Related Quality of Life After Haploidentical Stem Cell Transplantation for Adults With Sic...Haploidentical hematopoietic stem cell t...
-
Sickle Cell Disease in the Emergency Department: Confronting Barriers to Care“You’re too pretty to have a disease...
-
Phase 1 trial to test under-the-skin injection of sevuparin in sickle cell patientsModus Therapeutics is going to launch ...