Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Community Consortium
525 Tribble Gap RoadBox 1195
Cumming, Georgia, United States
Email Phone Web
The Sickle Cell Community Consortium is a US-based non-profit formed in 2014 to “harness and amplify the power of the patient voice”. The Consortium is comprised of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and medical and research advisers. These stakeholders collectively form the General Assembly of CBOs and Advocates, the decision-making body of the Consortium. The Consortium acts as an organizing entity providing the framework for the stakeholders of the General Assembly to apply a model of Collective Impact to define problems and gaps in the sickle cell community, identify strategies to address those needs and gaps, and determine the CBO, Community, and Corporate partnerships best equipped to implement those strategies to achieve significant and sustainable change.
Related Content
-
University of Maryland Medical CenterThe University of Maryland Medical Cente...
-
Building Capacity to Reduce Stroke in Children With Sickle Cell Anemia in the Dominican Republic: The SACRED TrialThe prevalence of sickle cell anemia (SC...
-
Raymona Lawrence, DPHDr. Raymona Lawrence serves as the Direc...
-
Opioid Abuse Backlash Could Hurt Sickle Cell Patients’ Medication Needs, Some FearWith drug overdoses now the leading caus...
-
Theodore Wun, MD, FACPDr. Wun graduated from the Albany Medica...
-
Adult Sickle Cell Clinic at UAMSThe University of Arkansas for Medical S...
-
The effects of relaxation intervention on pain, stress, and autonomic responses among adults with sickle cell pain i...Pain is the major complication for the a...