Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
The Sickle Cell Data Collection (SCDC) program collects health information about people with sickle cell disease (SCD) to study long-term trends in diagnosis, treatment, and healthcare access for people with SCD in the United States. The program will help inform policy and healthcare standards that improve and extend the lives of people with SCD.
Early screening, diagnosis, and treatment have allowed people with SCD to live much longer, making now a more important time than ever to study SCD health across the life course.
The SCDC program strives to improve health outcomes for people with SCD. By documenting health information of patients with SCD in the United States over time, the program can identify critical gaps in diagnosis, treatment, and healthcare access for people with SCD.
+myBinderRelated Content
-
World Sickle Cell Day: Sisters Living With Sickle Cell, Hoping for a Curehttps://www.youtube.com/watch?v=y3Bg0RJv...
-
Nirvana InitiativeNirvana Initiative is an organization se...
-
The Valerie FundThe Valerie Fund has pediatric sickle ce...
-
Joining hands: SCDAA and Emmaus medical partner to fight sickle cell diseaseIn observance of World Sickle Ce...
-
Most Important Information to the oneSCDvoice Communityhttps://www.onescdvoice.com/wp-content/u...
-
An Introduction to the Institute for Clinical Economic Review (ICER) and Their Implications for New Sickle Cell Dise...January 16, 2020 2:00 – 3:00 PM ET W...
-
WNY Girl Gets First Pediatric Bone Marrow Transplant for Sickle Cell in BuffaloKayla Rushing is the first pediatric pat...
