Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Thalassemia Patients Network
1139 St. John’s PlaceBrooklyn, New York, United States
Email Phone Web
Since April of 1992, the Sickle Cell Thalassemia Patients Network (SCTPN) has been providing education, advocacy, referral services, and support for individuals and families living with sickle cell disease, thalassemia (Cooley’s Anemia), and other inherited blood disorders. SCTPN, is a 501 (c)(3) tax-exempt organization, which provides education, advocacy, referral services, and support for individuals and families living with sickle cell disease (SCD), thalassemia (Cooley’s Anemia), and other inherited blood disorders.
Public education programs and webinars are provided to help increase awareness of hemoglobin disorders. These programs also provide non-medical information that empowers individuals to take control of their health and thus enjoy a better quality of life. Advocacy is provided for families as they migrate the sometimes complicated healthcare system. Referrals for related services are also provided.
Related Content
-
State of sickle cell disease – 2018 report cardSickle cell disease (SCD) — an inherit...
-
Sickle Cell 101Sickle Cell 101 is a 501(c)(3) nonprofit...
-
Children’s Sickle Cell Foundation, Inc.Children's Sickle Cell Foundation,Inc of...
-
Today’s Faces of Sickle Cell Disease: Swee Lay Thein, MB, BS, FRCP, FRCPath, DScSwee Lay Thein was educated in both Mala...
-
COVID-19 Health Alert for Patients and Caregivers – SCDAAMay 27, 2020 – COVID-19, the coronav...
-
Blood Industry Joins Together During Coronavirus Challengeshttps://www.youtube.com/watch?v=Z3V_DX_A...
-
Students With Sickle Cell Disease Stay on Track With Help From St. Louis Children’s HospitalBrandon Gardner graduated Friday on sche...