Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Thalassemia Patients Network
1139 St. John’s PlaceBrooklyn, New York, United States
Email Phone Web
Since April of 1992, the Sickle Cell Thalassemia Patients Network (SCTPN) has been providing education, advocacy, referral services, and support for individuals and families living with sickle cell disease, thalassemia (Cooley’s Anemia), and other inherited blood disorders. SCTPN, is a 501 (c)(3) tax-exempt organization, which provides education, advocacy, referral services, and support for individuals and families living with sickle cell disease (SCD), thalassemia (Cooley’s Anemia), and other inherited blood disorders.
Public education programs and webinars are provided to help increase awareness of hemoglobin disorders. These programs also provide non-medical information that empowers individuals to take control of their health and thus enjoy a better quality of life. Advocacy is provided for families as they migrate the sometimes complicated healthcare system. Referrals for related services are also provided.
+myBinderRelated Content
-
Debunking the Myths About Sickle Cell Diseasehttps://www.youtube.com/watch?v=OZMwkE-W...
-
Rare Across America 2021Rare Disease Legislative Advocates (RDLA...
-
Tri-County Sickle Cell Disease Association – OrlandoThe Sickle Cell Disease Association of T...
-
Advocacy Day – Sickle Cell Disease Association of America, Inc.Sickle Cell Disease Association of Ameri...
-
James Rogers, JrJames Rogers is a Sickle Cell Educator. ...
-
Children’s Sickle Cell Foundation, Inc.Children's Sickle Cell Foundation,Inc of...
-
10th Annual Walk with the Stars – Sickle Cell Disease Association of America, Inc.When: September 16, 2023 Where: Rash Fi...
