Sickle Cell Advocacy and Management Initiative (SAMI) is non-governmental organization established in 2008 and registered under the Corporate Affairs Commission Incorporated Trustees Act (28806). It was founded by Ms Toyin Adesola who has been through the traumatic challenges of living with sickle cell all her life. And she deemed it necessary to help those who may not be privilege, like her, to have reasonable medical attention, care and emotional support. Due to ignorance, they suffer extreme pain, sorrow, low self-esteem and stigmatization and many lack proper and affordable medical care in a disorder that is financially and socially draining.
When an uneducated family has to take care of not one but sometimes up to five children with Sickle Cell Disorder, they can hardly afford basic needs let alone medical needs, so there is a need for a proper support system.
We ask you join us to empower and improve the lives of people, especially with sickle cell disorder through strategic partnership via education, empowering, creating awareness, and providing support.