Or register here
Global Search

Trusted Resources: Evidence & Education

Scientific literature and patient education texts

Back to Evidence & Education / Patient Education

Caregivers and Sickle Cell Disease

key information

source: Centers for Disease Control and Prevention

year: 2020

summary/abstract:

Caregivers are responsible for the physical care and emotional support of those unable to care for themselves due to illness, injury, or disability (a condition that affects major life activities).

The challenges of caring for a loved one with a chronic disease, like sickle cell disease (SCD), can be isolating and overwhelming. Life as you know it ends, and you begin to spend all of your time and energy caring for your loved one. For many, however, caregiving is also a rewarding experience, bringing family members closer together.

Learn the Effect Sickle Cell Disease Has on Family Members & Caregivers

Below we share short vignettes (or snippets) from real-life stories of two caregivers of young adults with SCD, as well as the perspective of a young adult with SCD and the effect his condition had on his caregivers. Their experiences help shine a light on the:

• Role of caregivers
• Effect SCD has on a caregiver’s life
• Struggles and challenges faced by caregivers
• Ways caregivers have overcome challenges in order to keep their family safe and healthy

read more

Related Content

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close

© 2024 rareLife solutions Inc.

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close