Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Expanded newborn screening using new technologies
source: Screening, Technology And Research in Genetics Project (Hawai‘i Department of Health)
year: 2020
summary/abstract:This fact sheet has general information about sickle cell disease (SCD). Every child is different and some of this information may not apply to your child specifically. Certain treatments may be recommended for some children but not others. If you have specific questions about SCD and available treatments, you should contact your doctor.
The majority of the management recommendations pertain to hemoglobin SS, which is the most common type of SCD. If your child has hemoglobin SC or hemoglobin beta-thalassemia, ask your doctor for more specific information about that condition.
read moreRelated Content
-
MARAC Statement: Health Insurance Coverage for Hematopoietic Stem Cell Transplant for Sickle Cell Disease from HLA-m...Hematopoietic stem cell transplant for s...
-
A Guide to Living With Sickle Cell Disease: Define Yourself, Define Your LifeDefine yourself, define your life. No ma...
-
Clinical, genetic and biological characteristics of hbs_oman: a severe unrevealed form of sickle cell diseaseBackground: Hemoglobin SOman results fro...
-
MARAC Advisory Statement: Update About COVID-19December 23, 2021 – The Sickle Cell Di...
-
SCDAA Partners With Phi Beta Sigma FraternityThe Sickle Cell Disease Association of A...
-
ASH offers early look at updated SCD guidelines: Experts formulated >50 recommendations on sickle cell diseaseThe American Society of Hemato...
-
The neglected and forgotten Sickle Cell Disease – A silent mass killer in Kenyahttps://www.youtube.com/watch?time_conti...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
+myBinder