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Scientific literature and patient education texts
Transitioning your medical care: sickle cell disease
source: TeensHealth
year: 2019
summary/abstract:Sickle cell disease will be with you throughout your life, in some way or another. As you grow older, you will have questions about how it may affect you in the future. Now is a good time to start looking into “transitioning” from your pediatric specialist to doctors who treat adults.
What Is Transitioning?
When doctors talk about “transitioning,” they mean safely shifting a patient’s care from a child to an adult medical practice. But who takes care of you is just one part of transitioning. Transitioning also means learning how to take charge of your own health and manage every aspect of your care, from handling insurance forms to understanding and making decisions about treatments.
Your parents have probably played a big part in your medical care, and that’s great. But after you turn 18, they may not be able to see your medical records or talk about your health with your doctor even if you want them to.
Your medical team should be able to guide you in the transitioning process, but here are some good things to know.
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