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What motivates individuals with sickle cell disease to talk with others about their illness? Reasons for and against sickle cell disease disclosure

key information

source: Journal of Health Psychology

year: 2018

authors: Derlega VJ, Maduro RS, Janda LH, Chen IA, Goodman BM 3rd

summary/abstract:

This interview study documented how individuals with sickle cell disease make decisions about who to talk with concerning their illness based on psychological and interpersonal issues that are important to them. Reasons for sickle cell disease disclosure to specific persons were self-related (receiving support, venting feelings), other-related (educating others about sickle cell disease, forewarning others about sickle cell disease-related problems, someone asked for information about the disease), or situational (mostly focusing on another person being physically close or available to talk to). Reasons for sickle cell disease nondisclosure to specific persons were self-related (fear of rejection, being stereotyped, maintaining privacy) or other-related (lack of support, not worrying someone).

organization: Old Dominion University, USA; Eastern Virginia Medical School, USA

DOI: 10.1177/1359105316649786

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